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April 2020

A Note to Members & Colleagues

Now as much as ever, the Alliance for Patient Access acknowledges the tireless work, bravery and dedication of health care providers across the country. Thank you for your commitment to seeing patients and communities through the COVID-19 pandemic.

What''s New

Barriers to Patient Access: Prior Authorization

Watch Video

Read Results

Read Blog

View Infographic

Read Brief

West Virginia Curbs Misleading "Bad Drug" Ads

Read Blog

In Case You Missed It

Missed The Headache & Migraine Policy Forum's Capitol Hill policy panel? The summary report covers the conversation about the national headache doctor shortage.

Read Report

Featured Podcast

Listen Now

COVID-19 Resources

The Alliance for Patient Access continues to explore the policy implications of COVID-19 on patient-centered care. New resources on this topic are being added each week to a dedicated AfPA webpage.

Visit Website

Copyright ? 2020 AfPA, All rights reserved.
You are receiving this email because you signed up at our website or an event.

Our mailing address is:

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

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July 2020

What''s New

Patient-Centered Cardiovascular Care

Managing high cholesterol isn''t one-size-fits-all. If the first statin isn''t right, patients and health care providers can work together to find the best path forward.

Watch Video

New diagnostic and treatment approaches are reinventing how patients access vision care.

Read Brief

Policymakers must ensure that patients can access the Part D medications that are right for them - and that they can manage the out-of-pocket costs for treatment.

Read Paper

"Treatment during a gout flare is focused on reducing symptoms like pain and inflammation. However, treating only the flare ignores the underlying cause."

Read Interview

The Reauthorization Tragedy
By Salima L. Brillman, MD

"Insurers want me to prove the patient still needs the same medication he or she's been taking for the past few months. It's a pointless exercise, especially for those living with progressive, chronic conditions."

Read Blog

View Infographic

In Case You Missed It

Earlier this year, the Biologics Prescribers Collaborative released survey results that found patients' understanding of biological medications lags while development of new treatments soars. This 90-second video aims to bridge that gap in understanding.

Watch Video

Read Results

Copyright ? 2020 AfPA, All rights reserved.
You are receiving this email because you signed up at our website or an event.

Our mailing address is:

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

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Patient-Centered Care in Pandemic
Issue 5

By pushing the health care system to the brink, the COVID-19 pandemic illuminates why, now more than ever, patient-centered care is essential.

Join the Alliance for Patient Access in exploring the policy implications of COVID-19 and in honoring the health care providers who serve patients and communities in this time of crisis.

View Resources

Hurricane COVID
By Keith Ferdinand, MD

"New Orleans' problems were far from over when the hurricane waters receded 15 years ago. It will be the same with the far-reaching impact of COVID-19. Not just New Orleans, not just Louisiana, but Black Americans across the country will feel this pandemic's effects for years to come."

Read Blog

In Conversation:
Jake Zarah, MD, Discusses COVID-19 & Osteoarthritis Care

"Access to all forms of pain care allows physicians to be nimble and responsive, to give each patient what he or she needs. And when these conditions are well managed, it minimizes cost and strain on the health care system."

Read Interview

COVID-19 and Changes to Health Plan Rules

"With a global pandemic and rising unemployment, 2020 isn't shaping up as many patients expected. Now the Internal Revenue Service has loosened restrictions to help patients deal with medical expenses and unexpected life changes."

View Graphic

Read Blog

Rural Hospitals Falter Under COVID-19's Financial Strain

"But vulnerable rural hospitals, with less financial capacity to sustain a downturn, have no doubt suffered the worst. Already, rural America had lost 19 hospitals last year - a new record that was on track to be broken in 2020, even before the coronavirus hit."

Read Blog

In Conversation:
Peter Lio, MD, Discusses COVID-19 & Dermatological Care

"The pandemic has been hard for everyone, but those with more significant medical problems, including dermatologic ones, have yet another layer of burden."

Read Interview

Copyright ? 2020 AfPA, All rights reserved.
You are receiving this email because you signed up at our website or an event.

Our mailing address is:

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

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May 2020

What''s New

The inaugural white paper from AfPA''s Rare Diseases Working Group explores the barriers to treatment faced by patients with transthryretin amyloidosis.

Read Paper

Barriers to Patient Access: Step Therapy

The newest educational tool from the Patient Access Collaborative offers a plain-language explanation of step therapy.

Watch Video

Preventive treatment can protect infants from RSV, but national claims data shows certain babies aren't getting access to this FDA-indicated therapy.

Read Results

Read Blog

ICER Report Adds Insult to Injury for Cystic Fibrosis Patients

ICER''s health economists claim that the value of triple-combination therapy for cystic fibrosis doesn't justify its price. But ICER''s determination rests on a number of methodological flaws.

Read Blog

View Infographic

In Case You Missed It

It's hard to miss how COVID-19 has stretched America's health care system. But last month, the Alliance for Patient Access highlighted policy solutions that can help. Here's the position statement again, in case you missed it.

View Statement

See more COVID-19 resources on AfPA's dedicated resource page.

View Resources

Featured Podcast

Renowned expert Larry Edwards, MD, explains why history has given gout a bad rap -- and why patients need reliable resources to get the real story.

Listen Now

Copyright ? 2020 AfPA, All rights reserved.
You are receiving this email because you signed up at our website or an event.

Our mailing address is:

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

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summit@advancecardiohealth.org

Advance Cardiovascular Health, 1275 Pennsylvania Ave., NW, Washington, DC 20004

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summit@advancecardiohealth.org

Advance Cardiovascular Health, 1275 Pennsylvania Ave., NW, Washington, DC 20004

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SPEAKER ANNOUNCEMENT

What is patient-centered care? With a 2020 presidential election on the horizon, what are the main issues facing the cardiovascular community? How do health technology assessments affect cardiovascular innovation?

Explore these issues and more with speakers at this year''s Cardiovascular Health Policy Summit.

Betsy McKay

The Wall Street Journal

Matt Kazan, MPP
Avalere Health

Larry Sperling, MD
Emory University School of Medicine

Elizabeth Gamble, MD
Clinician & Patient Testimonial

Michael D. Shapiro, DO
Wake Forest Baptist Health

..... AND MORE!

Register Today

Copyright ? 2020 AfPA, All rights reserved.
You are receiving this email because you signed up at our website or an event.

Our mailing address is:

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

Add us to your address book

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

View this email in your browser

March 2020

A Note to Members & Colleagues

Now as much as ever, the Alliance for Patient Access acknowledges the tireless work, bravery and dedication of health care providers across the country. Thank you for your commitment to seeing patients and communities through the COVID-19 pandemic.

What''s New

Taking the Co-Pay Out of Coronavirus

Read Blog

Medicare Part D & Out-of-Pocket Smoothing

Watch Video

View Infographic

When Rare Disease is a Family Affair
By Marcus Urey, MD

Read Blog

In Case You Missed It

AllianceforPatientAccess.org has a new look. In case you missed it, AfPA launched a new website that features educational materials, advocacy opportunities and details on AfPA working groups and coalitions. Come visit!

View Site

Featured Podcast

Listen Now

Copyright ? 2020 AfPA, All rights reserved.
You are receiving this email because you signed up at our website or an event.

Our mailing address is:

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

Add us to your address book

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November 2020

What''s New

5 Things To Look For During Open Enrollment

"In addition to looking at premiums and coverage levels, enrollees should consider these five components."

Read Blog

Treating Thyroid Eye Disease From Home

"Vision disturbances and virus risks make it difficult for Medicare beneficiaries with thyroid eye disease to visit a clinic for treatment, a national survey shows. Policymakers can help by allowing for treatment to be infused by a medical professional from the safety and comfort of patients'' homes."

Watch Video

"The Innovation Center's findings provide the greatest value when they are based on well-constructed models of reasonable size that incorporate willing participants."

Read "Fast Facts"

"Survey input suggests that insurers were not as flexible as patients would have preferred when it came to care for migraine disease."

Read Results

New Medicare Approval Requirement Delays Treatment

"Getting prior authorization is a time-consuming process, and providers report that patients are suffering while they wait."

Read Blog

In Case You Missed It

In case you missed it, Mental Health Awareness Week was October 4-10. Regardless of cause, Americans need access to mental health treatment. Rimal B. Bera, MD, explains why in this guest blog.

Read Blog

Invitation

Register today for the Virtual National Policy & Advocacy Summit on Biologics

November 18
11:30am-2pm EST

Register Now

COVID-19 Resources

Cancer and the COVID-19 Disruption

"Cancers being missed now will still come to light eventually but at a later stage.and with worse prognoses."

Read Blog

COVID-19 Resource Library

Copyright ? 2020 AfPA, All rights reserved.
You are receiving this email because you signed up at our website or an event.

Our mailing address is:

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

Add us to your address book

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You can update your preferences or unsubscribe from this list.

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August 2020

What''s New

Drug Pricing Proposals Raise Access Questions

"Access often hinges on the question of affordability, but the proposed measures may not help patients as intended."

Read Blog

"The COVID-19 pandemic has imposed unprecedented stress upon America's health care system. It also has forced innovation that could alter the health care experience for many patients for years to come."

Read Report

Time to Make Telemedicine Policy Permanent

By Jill Farmer, DO, MPH

"Think of the Minute Clinics and urgent care facilities you see popping up across the country. In some ways, the traditional care model already has begun to shift. Telemedicine fulfills patients' growing desire for flexibility without sacrificing the physician-patient relationship."

Read Blog

"Say you have a condition like chronic back pain. You can call in to work, you can ask for a day off, you can apply for disability even. But with gout? The response is, ''Oh, isn't that self-induced?''"

Read Brief

"Members of the military must meet high standards of physical fitness and health, but that does not protect them from the impact of osteoarthritis. Osteoarthritis is one of the leading causes of medical discharge from the military, and service members over age 40 are twice as likely to develop arthritis after returning to civilian life."

Read Paper

In Case You Missed It

August is National Immunization Awareness Month. In case you missed it, read insights from National Coalition for Infant Health Medical Director Mitchell Goldstein, MD, on why "the power of life and death is in the vaccine."

Read Blog

COVID-19 Resources

In Conversation:
Dinesh Kalra, MD, Discusses COVID-19 & Rare Disease

"Some patients don't want to ''bother'' their doctor because they assume he's working with COVID patients. So they don't report that they're more short of breath or that their ankles are swelling or that they couldn't get their blood thinners for three weeks."

Read Interview

COVID-19 Resource Library

Invitation

Register today for the virtual 2020 Infant Health Policy Summit

September 10
11:30am-2pm EDT

Register Now

Copyright ? 2020 AfPA, All rights reserved.
You are receiving this email because you signed up at our website or an event.

Our mailing address is:

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

Add us to your address book

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

summit@advancecardiohealth.org

Advance Cardiovascular Health, 1275 Pennsylvania Ave., NW, Washington, DC 20004

Unsubscribe

View this email in your browser

July 2020

What''s New

Patient-Centered Cardiovascular Care

Managing high cholesterol isn''t one-size-fits-all. If the first statin isn''t right, patients and health care providers can work together to find the best path forward.

Watch Video

New diagnostic and treatment approaches are reinventing how patients access vision care.

Read Brief

Policymakers must ensure that patients can access the Part D medications that are right for them - and that they can manage the out-of-pocket costs for treatment.

Read Paper

"Treatment during a gout flare is focused on reducing symptoms like pain and inflammation. However, treating only the flare ignores the underlying cause."

Read Interview

The Reauthorization Tragedy
By Salima L. Brillman, MD

"Insurers want me to prove the patient still needs the same medication he or she's been taking for the past few months. It's a pointless exercise, especially for those living with progressive, chronic conditions."

Read Blog

View Infographic

In Case You Missed It

Earlier this year, the Biologics Prescribers Collaborative released survey results that found patients' understanding of biological medications lags while development of new treatments soars. This 90-second video aims to bridge that gap in understanding.

Watch Video

Read Results

Copyright ? 2020 AfPA, All rights reserved.
You are receiving this email because you signed up at our website or an event.

Our mailing address is:

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

Add us to your address book

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

View this email in your browser

February 2020

What''s New

Read Report

View Graphic

Proposed Federal Rule Could Unleash Co-Pay Surprise

Read Blog

In Case You Missed It

Speakers at the 6th Annual Summit on Balanced Pain Management discussed the latest in health plan coverage trends, therapeutic innovations, pain survey data and more. Missed it? Don't worry - see the recap report for details.

Read Report

Featured Podcast

Listen Now

Invitation

Cardiovascular Disease Working Group Meeting
March 27, 2020
Chicago, IL

Register Now

Copyright ? 2020 AfPA, All rights reserved.
You are receiving this email because you signed up at our website or an event.

Our mailing address is:

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

Add us to your address book

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

View this email in your browser

June 2020

Alliance for Patient Access Statement on Racial Disparities

Until communities of color can lay equal claim to patient-centered care, the Alliance for Patient Access will continue to advocate for policies that reduce health barriers, encourage optimal care for black Americans and respect the needs of each individual patient.

Read Statement

What''s New

The Subscription Solution

Some policymakers now use a novel approach to tackle a complex public health issue - treating the millions of Medicaid patients who have hepatitis C.

Watch Video

New guidelines can help patients and health care providers determine which combination of approaches work best for treating osteoarthritis.

Read Brief

Hurricane COVID
by Keith Ferdinand, MD

"New Orleans' problems were far from over when the hurricane waters receded 15 years ago. It will be the same with the far-reaching impact of COVID-19. Not just New Orleans, not just Louisiana, but black Americans across the country will feel this pandemic's effects for years to come."

Read Blog

"Step therapy" is just a nice way to say "fail first," which is what insurers' policies force upon patients with neurological conditions. And the tradeoffs are just not worth it.

Read Blog

View Infographic

The Voices of Gout

More than 9 million Americans live with gout. Gout Awareness Day honored their struggle, their stories and their resilience.

Watch Video

In Case You Missed It

Last month, the Coalition for Clinical Trials Awareness hosted the sixth annual Clinical Trials Awareness Week. In case you missed it, CCTA hosted a webinar and released a series of blogs that explored the current state of clinical trials and drug therapy developments during the COVID-19 pandemic.

View Materials

Featured Podcast

In this episode, Suzanne Staebler, DNP, unpacks new data showing that vulnerable infants are denied access to preventive treatment for RSV.

Listen Now

Copyright ? 2020 AfPA, All rights reserved.
You are receiving this email because you signed up at our website or an event.

Our mailing address is:

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

Add us to your address book

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

View this email in your browser

March 2020

A Note to Members & Colleagues

Now as much as ever, the Alliance for Patient Access acknowledges the tireless work, bravery and dedication of health care providers across the country. Thank you for your commitment to seeing patients and communities through the COVID-19 pandemic.

What''s New

Taking the Co-Pay Out of Coronavirus

Read Blog

Medicare Part D & Out-of-Pocket Smoothing

Watch Video

View Infographic

When Rare Disease is a Family Affair
By Marcus Urey, MD

Read Blog

In Case You Missed It

AllianceforPatientAccess.org has a new look. In case you missed it, AfPA launched a new website that features educational materials, advocacy opportunities and details on AfPA working groups and coalitions. Come visit!

View Site

Featured Podcast

Listen Now

Copyright ? 2020 AfPA, All rights reserved.
You are receiving this email because you signed up at our website or an event.

Our mailing address is:

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

Add us to your address book

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

Unsubscribe

summit@advancecardiohealth.org

Advance Cardiovascular Health, 1275 Pennsylvania Ave., NW, Washington, DC 20004

Unsubscribe

View this email in your browser

April 2020

A Note to Members & Colleagues

Now as much as ever, the Alliance for Patient Access acknowledges the tireless work, bravery and dedication of health care providers across the country. Thank you for your commitment to seeing patients and communities through the COVID-19 pandemic.

What''s New

Barriers to Patient Access: Prior Authorization

Watch Video

Read Results

Read Blog

View Infographic

Read Brief

West Virginia Curbs Misleading "Bad Drug" Ads

Read Blog

In Case You Missed It

Missed The Headache & Migraine Policy Forum's Capitol Hill policy panel? The summary report covers the conversation about the national headache doctor shortage.

Read Report

Featured Podcast

Listen Now

COVID-19 Resources

The Alliance for Patient Access continues to explore the policy implications of COVID-19 on patient-centered care. New resources on this topic are being added each week to a dedicated AfPA webpage.

Visit Website

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

Add us to your address book

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

View this email in your browser

Patient-Centered Care in Pandemic

By pushing the health care system to the brink, the COVID-19 pandemic illuminates why, now more than ever, patient-centered care is essential.

Join the Alliance for Patient Access in exploring the policy implications of COVID-19 and in honoring the health care providers who serve patients and communities in this time of crisis.

View Resources

In Conversation:
Robert Fekete, MD, Discusses COVID-19 & Prior Authorization

"Overburdened physicians now have even more time commitments. Yet in the middle of a global pandemic we're being asked to fill out paperwork."

Read Brief

COVID-19 & Non-Medical Switching

Download Graphic

Medicare Eases Home Infusion Restrictions Amid Coronavirus

"Public health guidance to stay home amid the coronavirus outbreak raises difficult questions for seniors who receive medical treatment via infusion. A new Medicare policy seeks to preserve access for those patients through changes to Part B."

Read Blog

Social Distancing 101

View Graphic

What the COVID-19 Stimulus Package Offers Patients & Providers

"Most people know the aid package includes payments for individuals and loans for the hardest-hit industries. It also earmarks emergency response money for states and municipalities. But what does it provide for patients and health care providers? The short answer: A lot."

Read Blog

For Preemie Parents, COVID-19 Anxiety Feels Familiar
By Deb Discenza, PreemieWorld

"There's the paranoia, the sense of helplessness, the thirst for information that can help protect your family. And, of course, the obsessive drive to keep every surface, every blanket, every door knob and light switch so clean that your child can't get sick."

Read Blog

Capping Insulin Co-pays Could Help Fight COVID-19
By Frank Lavernia, MD

"Supplies, equipment and hospital beds are needed to treat patients who are suffering from severe complications of COVID-19. Now more than ever, policy should support keeping those living with chronic conditions, such as diabetes, stable so they don't require urgent care."

Read Blog

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

Add us to your address book

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

View this email in your browser

June 2020

Alliance for Patient Access Statement on Racial Disparities

Until communities of color can lay equal claim to patient-centered care, the Alliance for Patient Access will continue to advocate for policies that reduce health barriers, encourage optimal care for Black Americans and respect the needs of each individual patient.

Read Statement

What''s New

The Subscription Solution

Some policymakers now use a novel approach to tackle a complex public health issue - treating the millions of Medicaid patients who have hepatitis C.

Watch Video

New guidelines can help patients and health care providers determine which combination of approaches work best for treating osteoarthritis.

Read Brief

Hurricane COVID
by Keith Ferdinand, MD

"New Orleans' problems were far from over when the hurricane waters receded 15 years ago. It will be the same with the far-reaching impact of COVID-19. Not just New Orleans, not just Louisiana, but Black Americans across the country will feel this pandemic's effects for years to come."

Read Blog

"Step therapy" is just a nice way to say "fail first," which is what insurers' policies force upon patients with neurological conditions. And the tradeoffs are just not worth it.

Read Blog

View Infographic

The Voices of Gout

More than 9 million Americans live with gout. Gout Awareness Day honored their struggle, their stories and their resilience.

Watch Video

In Case You Missed It

Last month, the Coalition for Clinical Trials Awareness hosted the sixth annual Clinical Trials Awareness Week. In case you missed it, CCTA hosted a webinar and released a series of blogs that explored the current state of clinical trials and drug therapy developments during the COVID-19 pandemic.

View Materials

Featured Podcast

In this episode, Suzanne Staebler, DNP, unpacks new data showing that vulnerable infants are denied access to preventive treatment for RSV.

Listen Now

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

Add us to your address book

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

View this email in your browser

Dear Friends and Colleagues,

AfPA needs your input. Amid the coronavirus outbreak, a new Medicare policy could preserve access to infusion therapy for patients under Part B by expanding access to home infusion. The policy seeks to provide flexibility for patients to continue receiving their treatments if they are higher risk for COVID-19 or if their site of care is disrupted by closure or limited access.

Please share your feedback on how this would affect you and your patients. Provide input by taking our short survey.

Take Survey

Best,
Josie Cooper
Executive Director

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

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February 2020

What''s New

Read Report

View Graphic

Proposed Federal Rule Could Unleash Co-Pay Surprise

Read Blog

In Case You Missed It

Speakers at the 6th Annual Summit on Balanced Pain Management discussed the latest in health plan coverage trends, therapeutic innovations, pain survey data and more. Missed it? Don't worry - see the recap report for details.

Read Report

Featured Podcast

Listen Now

Invitation

Cardiovascular Disease Working Group Meeting
March 27, 2020
Chicago, IL

Register Now

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

Add us to your address book

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

View this email in your browser

Patient-Centered Care in Pandemic
Issue 3

By pushing the health care system to the brink, the COVID-19 pandemic illuminates why, now more than ever, patient-centered care is essential.

Join the Alliance for Patient Access in exploring the policy implications of COVID-19 and in honoring the health care providers who serve patients and communities in this time of crisis.

View Resources

Will COVID-19 Cripple a Weary Health Care Workforce?

"Aside from the obvious impact to providers' personal and mental health, the current situation could have long-lasting effects on patients and their ability to access health care."

Read Blog

In Conversation:
Dharmesh Patel, MD, Discusses COVID-19 & Cardiovascular Care

"The coronavirus really catapulted the introduction of telemedicine into cardiovascular care. It helped that the government lifted a number of barriers to facilitate its use."

Read Interview

Spotting COVID-19

View Graphic

Long-term Care's COVID Challenge
By Parikshit Deshmukh, MD

"Some facilities are recognizing psychiatric care as essential. They continue to allow mental health professionals like me to visit and provide services to residents. At other facilities, it's a different story."

Read Blog

In Conversation:
Suzanne Staebler, DNP, Discusses COVID-19 & Infant Health

"The same babies at risk for RSV are vulnerable to severe COVID. That includes infants with underlying conditions, especially respiratory conditions. If they contract COVID, they struggle more than other infants."

Read Interview

COVID-19 & Prior Authorization

Download Graphic

AfPA

1275 Pennsylvania Avenue NW, Suite 1100A

Washington, DC 20004

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