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Membership Emails
Below is a sample of the emails you can expect to receive when signed up to hdfoundation.
COVID-19 Update We hope you and your loved ones are taking special care during this challenging time. Our hearts go out to everyone impacted by the virus. We wish a speedy recovery to anyone who is sick, and strength and resilience to all.
The Hereditary Disease Foundation team is working from home, and support for our scientists is continuing. We look forward to funding a new group of brilliant researchers later this year. Some of the programming we had planned for the year may be modified, and we will keep you updated. We are pleased that many of the pharmaceutical companies that support Huntington's disease research have also joined in the fight to combat COVID-19. There has never been a more important time for collaboration. Together we will prevail.
Stay Home and Watch TV
HDF President Nancy Wexler will be featured in the documentary series "Ken Burns Presents The Gene: An Intimate History," which will premiere on Tuesday, April 7, from 8-10pm ET, on PBS stations nationwide. It will also be streamed online by PBS so you can watch at your convenience. Other featured scientific luminaries include Paul Berg, Francis Collins, Jennifer Doudna, Shirley Tilghman, Siddhartha Mukherjee and James Watson. The series is based on Dr. Mukherjee's book. Part 2 will air the following Tuesday, April 14, from 8-10pm ET. To learn more about the show, read PBS's press release.
More to Watch.. To help mark their 75th anniversary this year, the Lasker Foundation is featuring Nancy Wexler in a five-part video on her life and work. In part 1, released in March (available on our website), Nancy shares her family's history with HD. In part 2 (coming out soon), Nancy discusses her journey behind identifying the gene that causes HD. Please check our website to find it. In 1993, Nancy received the prestigious Albert Lasker Public Service Award for research, policy and advocacy for Huntington's disease.
Thank You! An extra big thanks for your continued support of HDF. We look forward to getting through this difficult period while we continue our work towards treatments and cures for Huntington''s disease.
If you would rather not receive future communications from Hereditary Disease Foundation, let us know by clicking here. Hereditary Disease Foundation, 601 West 168th Street Suite 54, New York, NY 10032 United States
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What a great night to Celebrate the Promise of Huntington's Disease Research!?
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It was a virtual standing room only with attendees from across the country and around the globe gathered to hear from brilliant scientists who are breaking barriers to find treatments and cures for Huntington's disease. Participants joined us from 20 countries, among them Australia, India, Israel and Spain. So exciting!
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An enormous thank you to the amazing panel of scientists who shared their insights with us - our keynote, Dr. Francis Collins, Director of the National Institutes of Health; honorees Drs. Osama Al-Dalahmah and Ai Yamamoto, and presenters Drs. Nancy Wexler and Scott Zeitlin. We were thrilled to hear the latest updates on the most promising Huntington's disease clinical trials from Dr. Jang-Ho Cha at Novartis Institutes for BioMedical Research; Dr. Sarah Tabrizi on behalf of Roche; Dr. David Cooper of uniQure, and Dr. Paul Bolno of Wave Life Sciences. We thank Drs. Anne Young and Leslie Thompson, who head our Scientific Advisory Board, for their leadership role in making the evening so special.
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Thanks to all of you, friends old and new, for your support and commitment. ?
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The celebration continues!
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You can watch it all - again or for the first time - here
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Last night, we raised crucial funding to support Huntington's disease research. We hope you will consider making a gift if you haven't already done so.?
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Your support NOW will make a difference. Together we will conquer Huntington's disease.
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Innovating Research.Discovering Cures
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Published November 2020
This email was sent to @ Hereditary Disease Foundation, 601 W 168th Street, Suite 54, New York, NY 10032, United States Unsubscribe
Nancy Wexler Featured in 2-Part American Academy of Neurology Podcast
Part Two Airs Today!
Tune in and hear Nancy Wexler discuss her life and work in a two-part interview on the American Academy of Neurology Podcast. Both parts can now be accessed here or by searching for the "Neurology Podcast" in the Apple podcast app or most other podcast apps.
We hope you will listen as Nancy tells her personal story and discusses the future and promise of Huntington's disease research.
If you would rather not receive future communications from Hereditary Disease Foundation, let us know by clicking here. Hereditary Disease Foundation, 601 West 168th Street Suite 54, New York, NY 10032 United States
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We look forward to enjoying a great virtual evening with you at our HDF Virtual Gala & Symposium 2020 on Tuesday, November 17. ??
Hear how science is changing the face of Huntington's disease!
Register Now:
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The event is free and open to all.?
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Published October 2020
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Thank you to everyone who has already registered!
If you haven't registered yet, there's still time. It's free and open to all.? Please join us to hear exciting updates from leading scientists about what's new and on the horizon for Huntington's disease research.?
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Register Now for our Virtual Gala and Symposium 2020?
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Published November 2020
This email was sent to @ Hereditary Disease Foundation, 601 W 168th Street, Suite 54, New York, NY 10032, United States Unsubscribe
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Dear Friends,
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We are excited to let you know that we''ll be holding our Virtual Gala and Symposium 2020 on Tuesday, November 17. The evening will feature Dr. Francis Collins, Director of the National Institutes of Health, updates on the latest Huntington''s disease clinical trials and new information about cutting-edge research.?
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While we cannot gather in person this year, we look forward to enjoying a great virtual evening with you. We hope you will raise a glass from your location to toast the brilliant science that is changing the face of Huntington''s disease!?
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The event is free and open to all.?Register Now!
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Register Now!
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Published October 2020
This email was sent to @ Hereditary Disease Foundation, 601 W 168th Street, Suite 54, New York, NY 10032, United States Unsubscribe
News from the Hereditary Disease Foundation
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Funding Brilliant Scientists, Game-Changing Research
Each year our Scientific Advisory Board, under the leadership of Drs. Anne B. Young of?Massachusetts General Hospital and Harvard Medical School, and Leslie M. Thompson of University of California, Irvine, reviews grant and fellowship applications from around the world and selects the most innovative and promising Huntington's disease research projects to fund. We're thrilled to announce new awards totaling over $1.5 million for 2020.
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Here's an overview of the grantees and their projects.You will be hearing more about their research in the months ahead!
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Osama Al-Dalahmah, Columbia University Medical Center
First Recipient of the Nancy S. Wexler Young Investigator Prize
Studying Huntington's disease astrocytes in different parts of the brain: A regional study of the landscape of gene expression at the single cell level
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Cheryl Arrowsmith, University of Toronto
Unravelling the connections between the Huntington's disease protein and our genetic material
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Abdellatif Benraiss, University of Rochester
White matter role in the pathology of Huntington''s disease
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Veronica Ines Brito, University of Barcelona - Instituto de Neurosciencias, Spain
Exploring the role of RNA editing on the generation of pathogenic huntingtin fragments
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Richard A. Hickman (joint with Jean Paul G. Vonsattel), Columbia University Irving Medical Center
Human tissue banking for the Huntington's disease research community
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Ali Khoshnan, California Institute of Technology
Developing gut-based therapies for Huntington''s disease
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Ryan Lim, University of California, Irvine
Interactions between metabolism, gene expression, and gender in Huntington's disease
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Roy Maimon, Ludwig Institute for Cancer Research, University of California, San Diego
Mentor Name: Don W. Cleveland
Therapy development for Huntington's disease using in vivo conversion of astrocytes into striatal neurons
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A. Jenny Morton, University of Cambridge
Can core body temperature be used as a readout for changes in metabolism in Huntington's disease?
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Daniel O'Reilly, University of Massachusetts Medical School
Mentor: Anastasia Khvorova
Understanding the role of aggregates in Huntington''s disease
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Jennie C. Lacour Roy, Massachusetts General Hospital, Harvard Medical School
Mentor: Ricardo Mouro Pinto
Testing of novel drugs targeting CAG repeat expansions as candidate therapeutics for Huntington''s disease
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David M. Sabatini, Whitehead Institute for Biomedical Research, Massachusetts Institute of Technology
Using metabolism to measure defects in cellular self-cleaning in Huntington's disease
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Joan Steffan, University of California, Irvine
Identification of Huntingtin-dependent cellular trash collection pathways
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Xiao Sun, University of Texas Southwestern Medical Center
Mentor Name: Guo-Min Li
Mutant huntingtin promotes CAG repeat expansion
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Nicholas Todd, Brigham and Women's Hospital, Harvard Medical School?
Improving delivery of Huntington's disease therapies to the brain
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Jean Paul G. Vonsattel (joint with Richard A. Hickman), Columbia University Irving Medical Center
Human tissue banking for the Huntington's disease research community
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Ai Yamamoto, Columbia University
Determining how the protein Alfy may improve Huntington''s disease-like symptoms
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Michael Zody, New York Genome Center
New York Genome Center Huntington's Disease Brain Genotyping Project
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We Can't Do It Without You
Thank you to our dedicated donors and new friends who have already made generous contributions to the Nancy S. Wexler Discovery Fund. If you haven't already, we hope you will consider making a gift. Philanthropy is the fuel that drives research discoveries and leads to treatments and cures. Your gift will help us continue to fund the most collaborative and exceptional Huntington''s disease research. What better way to honor Nancy Wexler, President of the Hereditary Disease Foundation, as she celebrates her 75th year!
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Innovating Research.Discovering Cures
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?Published September 2020
This email was sent to @ Hereditary Disease Foundation, 601 W 168th Street, Suite 54, New York, NY 10032, United States Unsubscribe
December 17, 2020
Dear Friends,
As 2020 comes to a close, we are thinking of you and thank you for being a member of the Hereditary Disease Foundation family.
This has been a year of unprecedented outreach, expansion and some marvelous surprises at HDF.
Our Scientific Advisory Board expanded to 35 members worldwide. This group of brilliant scientists reviewed over 130 applications, and we are now funding 32 HD researchers. This year's increase in grant funding was made possible by several "surprise" anonymous donors, and the continued support of many loyal friends like you.
This spring, we established the Nancy S. Wexler Discovery Fund to honor the pioneering spirit and relentless dedication of the Foundation's President. The Fund supports scientific collaborations, educational workshops and conferences, as well as the Nancy S. Wexler Young Investigator Prize. Dr. Osama Al-Dalahmah was recently named the first recipient of this Prize.
In November, Dr. Ai Yamamoto received the 2020 Leslie Gehry Brenner Prize for Innovation in Science. This award was established by the family of HDF Founding Trustee Frank Gehry in memory of his daughter, "a gifted artist with many of the qualities of a creative scientist." Ai received this honor for her decades of research on HD, including her recent work on a protein called Alfy, which may delay the onset of symptoms of HD.
On November 17, HDF celebrated our virtual 2020 Gala & Symposium with Dr. Francis Collins, Director of the National Institutes of Health, delivering the keynote address. An update on clinical trials featured presentations with representatives from Novartis, Roche, uniQure, and Wave Life Sciences. To view these presentations and to read about the breakthrough research we are funding, please visit our website at www.hdfoundation.org.
With sincere thanks for making our scientific work possible, and warmest wishes for a peaceful holiday season,
Meghan Donaldson Chief Executive Officer
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Innovating Research.Discovering Cures
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This email was sent to @ Hereditary Disease Foundation, 601 W 168th Street, Suite 54, New York, NY 10032, United States Unsubscribe
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Dear Friends,
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If you've already registered for the HDF Virtual Gala and Symposium 2020, Celebrating the Promise of Huntington''s Disease Research, thank you! If you haven't, now is the time. Register Here
Join us to celebrate and hear Dr. Francis Collins, Director of the National Institutes of Health. Scientists from Novartis, Roche, uniQure and Wave Life Sciences will provide updates on current clinical trials for Huntington's disease and give us a glimpse into what's coming in the year ahead. The evening will be topped off with exciting news about the latest cutting edge research from the recipients of the Leslie Gehry Brenner Prize for Innovation in Science and the Nancy S. Wexler Young Investigator Prize. Join us!
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The event is free and open to all.? Register Now!
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Published October 2020
This email was sent to @ Hereditary Disease Foundation, 601 W 168th Street, Suite 54, New York, NY 10032, United States Unsubscribe
News from the Hereditary Disease Foundation
#GivingTuesdayNow Today is #GivingTuesdayNow, a new global day of unity and giving in emergency response to the unprecedented need caused by COVID-19.
While we are all facing challenges related to the COVID-19 pandemic, we also know that the Hereditary Disease Foundation's search for treatments and cures for Huntington's disease must continue.
Thank you for whatever you are able to GIVE TODAY to bring us that much closer to our goal of treating and curing Huntington's disease.
?May Is Huntington's Disease Awareness Month Every day is the right day to raise awareness, combat stigma, and continue supporting research towards treatments and cures for HD. But this month is an opportunity to make a special effort. We hope you will join in educating others about HD and spreading the word about how science is making a difference for the HD community.
Nancy Wexler Interview, Part 3 - Lasker Foundation 75th Anniversary Celebration In an extraordinary multipart interview with the Lasker Foundation, HDF President Nancy Wexler discusses her life's work to increase awareness and find therapies for Huntington's disease.
Dr. Nancy Wexler
In this third installment, recently launched, Nancy discusses potential approaches to treating Huntington's disease.
In the first chapter, she shares her family's history with HD and explains why she chose to dedicate her life to researching this genetic disorder.
In the second chapter, she shares her journey to identify the gene that causes HD.
Stay tuned for chapters four and five coming soon!
If you would rather not receive future communications from Hereditary Disease Foundation, let us know by clicking here. Hereditary Disease Foundation, 601 West 168th Street Suite 54, New York, NY 10032 United States
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