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Pachyonychia Sign Up Information

Last Updated:

6/19/2020

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Membership Emails

Below is a sample of the emails you can expect to receive when signed up to Pachyonychia.

Welcome to PC Project and the ...

Dear Jon,

Thank you for contacting PC Project and thank you for joining the IPCC email list.

Because PC is an ultra-rare disease and few people have even heard about it, I''d love to know a little more about your interest in PC and more importantly, learn how we can be of service to you.

As the only patient support organization in the world to help PC patients and facilitate PC research, we welcome you.

Best regards,

Janice

-- 
Janice Schwartz
Executive Director, PC Project
T. 801-987-8758 M. 801-201-9780
jan.schwartz@pachyonychia.org
www.pachyonychia.org

On 6/22/2020 6:54 AM, Pachyonychia.org wrote:

From: Jon <@>
Subject: Join the IPCC: "Jon"

Message Body:

Interested In: Mark
You Are A: Researcher

Name: Jon
Title: Mr
Email: @
Phone: 07959207275
Address: 219 Langham Road

Details:
Jon

--
This e-mail was sent from a contact form on Pachyonychia Congenitia Project (http://www.pachyonychia.org)

Raw Data Registration Structure Registration Form Text

Registration

What are you interested in?

Title

Phone

Home address

What are you interested in?

Access to available cell lines, biobank samples, drug samples, etc.

Copies of publications, presentations, or other information

Join the IPCC and recieve IPCC quarterly newsletters

Patient recruitment for approved studies

Patient recruitment for Grand Rounds or conference events

Write and publish PC-related articles Are you a:

Physician

Researcher

Post-Doc

Data Name	Data Type	Options
What are you interested in?	Text Box
Title	Text Box
Email	Text Box
Phone	Text Box
Home address	Text Box
	option	What are you interested in?
	option	Access to available cell lines, biobank samples, drug samples, etc.
	option	Copies of publications, presentations, or other information
	option	Join the IPCC and recieve IPCC quarterly newsletters
	option	Patient recruitment for approved studies
	option	Patient recruitment for Grand Rounds or conference events
	option	Write and publish PC-related articles Are you a:
	option	Physician
	option	Researcher
	option	Post-Doc
	tel